Well then...

So no Hirschsprung's. Yay. But, since then, we have had issues and we had to be admitted for him to be cleaned out. Not to get overly detailed, but the barium from the test in May? Yeah, it finally came out. But hey, nothing to be concerned about. Right. I'm working on my plan on where to go to see a different specialist. Might be Cinci if we can get a release. Otherwise, we might look into other states.

Anyway. I have been able to review some fun stuff lately. 😃 of note is a remote controlled Truggy. Truck and Joe have had some fun playing with it. They tried to go off road with it in our yard, but it didn't do too well. Of course, our yard is not optimal, but had they been able to drive it from the front to back, oh man! They have been playing in the drive. T loves that it is "faster than even me!" And he tries to chase it. That is when he lets DaDdy have a turn. I like that it's something they can play with together. Not that our other toys aren't able to be played together, but this seems to be a perfect father/son activity.

Truck discovered YouTube videos a few months back. Oh. My. Goodness. He loves watching surprise egg videos and blind bag videos. And today? (I took the videos away for a few weeks) He is watching reviews that tell what ages the toys are for. Great. "Mommy! I can get that! It's for 1 and up!" I am in trouble. I don't mind toys, I like things that can have more than one use. You know,maybe educational if we can. We use cars for many things-colors, counting, shapes. But mystery eggs? So far all I've learned is that he doesn't have all of the Paw Patrol pop-up characters. Oy.

Well, I'm done rambling for now. I apologize for the lack of posts. Just been trying to get everything straight. Hopefully more updates and reviews will be coming soon! 

Back to square one

We received the official results from C's biopsy today. He does not have Hirschsprung's Disease. (I had kind of a feeling after seeing his results posted on his account, but without official interpretation, I didn't want to make any mistakes.) While it is awesome that he doesn't have to have the surgery, we are now back to where we were. He isn't gaining weight very fast, he was 6.7 kgs (14.7 lbs) last week when they weighed him. He is around 26 inches. That means he hasn't really grown a whole lot. We know that he will be small, and that growth will be slow, but this is a little more than just a "little". C's neurologist (also the doctor at the Down Syndrome Clinic) was the one who had recommended we see a GI specialist. The surgeon said today that he was going to pass along the info to the GI doc, so we'll see what our next step is. Poor boy is also very constipated if he doesn't receive lots of help from Miralax and Milk of Magnesia. (Today was a day that was proof that the meds work-poop all over me, him, and the chair!) J went to the allergy doc today to see what he was allergic to. He came home and said the better question was what he wasn't allergic to. He might be starting allergy shots soon. Hopefully it will help. We did think it was kind of amusing that he didn't have a reaction (that he remembers) to feathers. He hates birds. He did have a reaction to cats and dogs, both things that he doesn't hate (but doesn't necessarily like) and that T would like to have as pets. We will definitely use the cat one to our advantage, but I'm not sure about the dog one. We'll have to see how the allergy shots work out.

Just an update

The results from C's biopsy came back today. They were inconclusive. Ugh. So, we have to schedule a surgical biopsy, probably for next week. Not fun! 

Today we met with our early intervention specialist and physical therapist from Help Me Grow at Target. How nice is it that they will meet with us to help us solve problems?! We wanted to find a solution so that C can ride in a cart when we go to stores. He's so tiny-14 pounds!-and he could still be riding in his carrier, but I really don't want him to. He's a year old, and he needs to be able to see the world! We were able to make up something that will work. It consists of his Snug 'N Go, some very cardboard,  a latex belt that is velcroed around the contraption, and a pool noodle. We were able to position the cardboard behind him so his back was up a little straighter, followed by the Snug 'N Go, and then we secured him to the card using the latex velcro belt thing. (I know it has a name. I just don't know what it is.) We could use the belt that the cart has, but that is right under his arm pits, and who wants to be strapped to something by your arm pits?! The pool noodle went in front of him, kind of to keep him in place, and also give him something to hold on to (and, as an added bonus, it held my Starbucks iced tea in place as we walked around the store to see if it would work). It might not be the prettiest contraption, but it worked! We were able to walk around Target for almost 45 minutes without him falling over! Now that I know how to use my sewing machine, I might venture out and make a cover for the cardboard so it is a little "prettier". It doesn't need to be, but I think it would be nice, and it would let me practice my new skill. If I do indeed "upgrade", I will post a picture.

Can you believe this weekend is Memorial Day weekend?! 2015 has flown by! We don't have any set plans as of yet, but who knows what we might do...I'm guessing it will involve Munzees at some point though! ;-)  

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Just another day in the life...

So this week has been interesting, to say the least. On Monday, C had to have a procedure done to see if he does indeed have Hirschsprung's Disease. Last week the poor kid had an enema, and the results (according the report on his file online) say that they are consistent with Hirschsprungs.  What is HD? (Sorry, I'm abbreviating. Just easier.) It's when the lower intestine doesn't have functioning cells and they have to remove part to make it better. For a better explanation, you can read up on it here. We are waiting on the results from the colon biopsy that was done on Monday to verify. If he does indeed have it, he will be having surgery. While I am not thrilled about this, I know it's the best for him, AND it might mean that the little man will start growing. 

Today C had his one year pictures. I cannot wait for them to be posted. We go to Heather Pelko Photography. We started going there when I was just pregnant with C. (We also go to another place, but that is "box" store type photography place, and we don't go too often.) We have developed a friendship and I am so thrilled that she is able to take pictures of the boys! Even when T or C is having a rough day, she still gets a great shot or two (or more!) Today was no exception. I had multiple outfits and I had some props that I wanted to be sure to have included. Some places might complain. Not her! (Well, not to me anyway. lol) C looked adorable, and I loved seeing the previews on the camera. (She might post a preview on her FaceBook page if you want to check it out in a few days.) I totally recommend having her do your photos if you life in Northeastern Ohio. She doesn't just do kids photos either! She does family photos, senior photos, weddings, still life, you name it! I definitely think you should check her out!

Before our session, C and I grabbed two Munzees that were nearby. Usually I have T with me, but for the photo session I didn't. So I was going solo. Luckily the codes were easy to find. Eh, who am I kidding? Most of the codes are easy to find. It's fun finding them!Wait. You've never heard of Munzee codes?! It's ok. I hadn't until a month or so ago. It's a scavenger hunt for QR codes that other people have placed in plain sight. Many of them are on signs or light posts. You check the map, go to the location, find them,  scan them with the Munzee App and get points. No, you don't get anything for the points, but you get to have fun looking for the codes. Tonight after J got home from work we went to Southgate Park and found a few more with T. He gets so excited when he finds them, it's awesome! Plus, Munzee finding is great exercise, great together time, and as long as you have a smart phone with data available, a "free" activity too! I slowly plan on introducing T to geocaching too. I found some new ones at Stan Hywet that I think we might check out this summer. (Or this week, depending on the weather on Friday. lol) Ok. You haven't heard of geocaching either? Really?! It's like munzee code finding, but not. Someone hides something-anything from a small film canister (remember those?!) to an old ammo box out in the world, they post the coordinates, and you find them. Then you sign the log that is there, and post online that you found it. People often leave behind toys or something else small. I took T to find one at the local library awhile ago, and he thought it was fun to get a sticker prize for finding it. Not all of them have items to take, but if they do, you want to be sure to have something to trade for it, unless instructed otherwise. I learned about caching awhile ago (2006) and I have enjoyed the adventures that it has brought me. I've discovered some cool locations like cemeteries in Tennessee, I found where Johnny Cash was buried, I've seen some awesome skylines, and well, I've even had a mouse run out of a cache at me. You just never know! If you're looking for a fairly inexpensive way to spend time outdoors, as long as you have a GPS, I totally recommend either one of these.

Well...It is once again late, and I need to get some rest. Tomorrow is a new day and we have new adventures awaiting!